Forty-five per cent of skin condition patient groups represent patient interests to regulators. Participation in HTA and reimbursement reviews is most common (29%), while 18% seek to facilitate equitable access to healthcare.
45% of respondents from Skin conditions ‘Regularly’ or ‘Sometimes’ represent patient interests to drug regulators
Patient groups representing each Skin conditions sub-type
40 patient groups across 6 sub-types
interactions
We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute].
Wij worden regelmatig geconsulteerd door de commissie Wees, maar ook door het Zorginstituut.
National skin-conditions patient group, Netherlands
interactions
The recent NICE approval of Leo Pharma's Delgocitinib. We spoke on behalf of patients (in favour) at the Board Review.
The recent NICE approval of Leo Pharma's Delgocitinib. We spoke on behalf of patients (in favor) at the Board Review.
National skin-conditions patient group, UK
actions & advocacy
For example, the Kela [Kansaneläkelaitos – Social Insurance Institution of Finland] medicine credit pilot [a Finnish policy experiment designed to help low-income patients afford high-cost prescription medicines when they face a large out-of-pocket payment all at once], which commenced on 27 October and will run for three years.
Esim. Kelan lääkeluottokokeilu, joka on alkanut 27.10. ja kestää kolme vuotta.
National skin-conditions patient group, Finland
actions & advocacy
Daily taking samples or concessions for severe to moderate psoriasis patients, particularly biologics, who are not covered by insurance [in India].
Daily taking samples or concessions for severe to moderate Psoriasis patients, particularly biologics, which are not covered by insurance.
National skin-conditions patient group, India
The percentages below highlight how the 17 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.
interactions
10 mentions
5 mentions
3 mentions
2 mentions
3 mentions
2 mentions
1 mention
2 mentions
1 mention
1 mention
1 mention
1 mention
actions & advocacy
4 mentions
2 mentions
1 mention
1 mention
3 mentions
3 mentions
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Our research covers 2,262 patient groups representing 100 countries and 45 therapy areas. The sample report shows you the depth of analysis for a single country or therapy area. To access any other reports, please get in touch.
Visit patient-view.com to gather more information or email: Alex Wyke, alexwyke@patient-view.com
