Forty-two per cent of visual impairment patient groups represent patient interests to regulators. Participation in HTA and reimbursement reviews is most common (31%), while 23% seek to facilitate equitable access to healthcare.
42% of respondents from Visual impairment ‘Regularly’ or ‘Sometimes’ represent patient interests to drug regulators
Patient groups representing each Visual impairment sub-type
31 patient groups across 4 sub-types
interactions
We are active in discussions on the incorporation of therapies into the SUS [Sistema Único de Saúde – Unified Health System], access to high-cost medicines.
Atuação em debates sobre incorporação de terapias no SUS, acesso a medicamentos de alto custo, participação em discussões sobre ATS e judicialização em doenças raras.
National visual-impairment patient group, Brazil
interactions
We often advocate for the acceptance of new drugs to market, the inclusion of vision care products to provincial health coverages, and our members take part in CDA [Canada’s Drug Agency] surveys and sessions.
We often advocate for the acceptance of new drugs to market, the inclusion of vision care products to provincial health coverages, and our members take part in CDA surveys and sessions often.
National visual-impairment patient group, Canada
actions & advocacy
We provide patient input to CDA [Canada’s Drug Agency] when they are deciding whether or not to recommend public reimbursement for new drugs. We also provide input to provinces.
We provide patient input to Canada's Drug Agency when they are deciding whether or not to recommend public reimbursement for new drugs. We also provide input to provinces. In the past, we have also advocated directly with the pCPA, which negotiates drug prices, but this is not a regular occurrence.
National visual-impairment patient group, Canada
actions & advocacy
Cross-Party Parliamentary Group — IVT [Intravitreal Therapy] Technical Working Group. Cataract Technical Working Group — Regional Partnerships — Local Activities.
Gruppo Interparlamentare - Tavolo Tecnico IVT. Tavolo Tecnico Cataratta - Partnership Regionali - Attività Locali.
National visual-impairment patient group, Italy
The percentages below highlight how the 13 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.
interactions
5 mentions
4 mentions
1 mention
2 mentions
2 mentions
1 mention
1 mention
actions & advocacy
6 mentions
3 mentions
2 mentions
1 mention
3 mentions
1 mention
1 mention
1 mention
3 mentions
2 mentions
1 mention
2 mentions
1 mention
1 mention
1 mention
1 mention
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Our research covers 2,262 patient groups representing 100 countries and 45 therapy areas. The sample report shows you the depth of analysis for a single country or therapy area. To access any other reports, please get in touch.
Visit patient-view.com to gather more information or email: Alex Wyke, alexwyke@patient-view.com
