Of the 95 general health patient groups, 47% represent patient interests to regulators. They most commonly participate in HTA and reimbursement reviews (17%), while 20% focus on influencing policy and facilitating equitable healthcare access.
47% of respondents from General health ‘Regularly’ or ‘Sometimes’ represent patient interests to drug regulators
Patient groups representing each General health sub-type
95 patient groups across 8 sub-types
interactions
Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies.
Reuniones de la mesa de UPC, INVIMA, Superintendencia, ministerio, IETS, etc.
International general-health patient group, Colombia
interactions
We nominate patient group representatives as committee members on bodies such as the HIPDC [Health Insurance Policy Deliberation Committee] and the DREC [Drug Benefit Evaluation Committee], and we play a role in gathering and conveying the views of patients to these bodies.
건강보험정책심의위원회, 약제급여평가위원회 등 환자단체 대표를 위원으로 추천하고 있으며 환자들의 의견을 수렴해 전달하는 역할을 하고 있습니다.
National general-health patient group, Korea
actions & advocacy
In our capacity as the initiating organization of a Patient Assistance Program (PAP) for newly approved medicines, we gather and represent patient perspectives. Where a genuine unmet clinical need exists and no clinically viable alternative is available in China, we advocate for the regulatory approval and market authorization of therapies such as secukinumab [biologic medication used to treat autoimmune conditions like plaque psoriasis, psoriatic arthritis, and ankylosing spondylitis] and…
National general-health patient group, China
actions & advocacy
EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances.
EPECS werkt samen met ACN, kantoor in Brussel. Samen adresseren we bijvoorbeeld vaccinatievraagstukken, de kosten daarvan, en toegang voor mensen in een kwetsbare positie.
International general-health patient group, Netherlands
The percentages below highlight how the 41 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.
interactions
15 mentions
7 mentions
3 mentions
3 mentions
1 mention
1 mention
6 mentions
5 mentions
1 mention
4 mentions
3 mentions
1 mention
4 mentions
2 mentions
2 mentions
2 mentions
1 mention
1 mention
1 mention
1 mention
actions & advocacy
13 mentions
5 mentions
5 mentions
3 mentions
12 mentions
8 mentions
2 mentions
2 mentions
9 mentions
8 mentions
1 mention
2 mentions
2 mentions
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Our research covers 2,262 patient groups representing 100 countries and 45 therapy areas. The sample report shows you the depth of analysis for a single country or therapy area. To access any other reports, please get in touch.
Visit patient-view.com to gather more information or email: Alex Wyke, alexwyke@patient-view.com
