Of the 25 disability patient groups, 32% represent patient interests to drug regulators. Leading activities include advocating for fair medicine pricing, addressing cost barriers for low-income and vulnerable people and/or equitable access to healthcare (each 18%).
32% of respondents from Disability ‘Regularly’ or ‘Sometimes’ represent patient interests to drug regulators
Patient groups representing each Disability sub-type
25 patient groups across 3 sub-types
interactions
We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body.
Mas gostaríamos de ter um maior relacionamento com esses reguladores. Já tentámos concorrer ao organismo regulador dos medicamentos europeus.
National hearing-loss patient group, Portugal
interactions
We were involved in NICE [National Institute for Health and Care Excellence] scoping and appraisal (and an appeal) of collagenase.
We were involved in NICE scoping and appraisal (and an appeal) of collagenase.
National disability patient group, UK
actions & advocacy
Correspondence submitted to request reimbursement of a specific voice prosthesis.
Courrier pour demander le remboursement d'un implant phonatoire spécifique.
National disability patient group, France
actions & advocacy
Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities.
Todos os anos enviamos o caderno reivindicativo aos grupos parlamentares. Este ano incluía a gratuitidade dos medicamentos e dispositivos médicos para pessoas com deficiência.
National disability patient group, Portugal
The percentages below highlight how the 11 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.
interactions
3 mentions
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
actions & advocacy
5 mentions
2 mentions
2 mentions
1 mention
2 mentions
2 mentions
1 mention
1 mention
GET THE REPORT
Our research covers 2,262 patient groups representing 100 countries and 45 therapy areas. The sample report shows you the depth of analysis for a single country or therapy area. To access any other reports, please get in touch.
Visit patient-view.com to gather more information or email: Alex Wyke, alexwyke@patient-view.com
