| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS treatments and by contributing the patient voice to policy, access, and reimbursement discussions. While MSSA does not set or negotiate drug prices, we engage with regulators, policymakers, and advisory bodies to highlight the real-world impact of pricing and access decisions on people living with MS, particularly in a South African and broader African context. | Neurological
> Multiple sclerosis | Regulatory partnership
> Working with regulatory bodies | 5,000 | Regional | Regularly | 119035905477 |
| We are founder members of the SA [South Africa] NCD [Non-Communicable Disease] Alliance. | Endocrine
> Diabetes and hypertension | Regulatory partnership
> With other healthcare advocates | 10,000 | National | Sometimes | 119045009637 |
| We are one of three founding members of the South African Non-Communicable Disease Association. | Endocrine
> Diabetes and hypertension | Regulatory partnership
> With other healthcare advocates | 10,000 | National | Sometimes | 119051187994 |
| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS [Multiple Sclerosis] treatments and by contributing the patient voice to policy, access, and reimbursement discussions. | Neurological
> Multiple sclerosis | Impacting policy and legislation
> Influence healthcare policy and legislation | 5,000 | Regional | Regularly | 119035905477 |
| CANSA [Cancer Association of South Africa] engages in policy advocacy, stakeholder consultations, and public submissions to promote equitable access to cancer prevention, diagnosis, and treatment. | Cancer
> Cancer: most types | Impacting policy and legislation
> Influence healthcare policy and legislation | 10,000 | National | Regularly | 119044111428 |
| CANSA engages in policy advocacy, stakeholder consultations, and public submissions to promote equitable access to cancer prevention, diagnosis, and treatment. This includes contributing patient-centred perspectives on medicine access, reimbursement, and health system barriers through engagements with national health authorities, regulatory processes, and multi-stakeholder forums. Examples include: advocacy and submissions related to improving access to essential cancer medicines and diagnostics within the public health system; participation in consultative processes and policy discussions that inform regulatory and pricing frameworks impacting oncology treatments. | Cancer
> Cancer: most types | Impacting policy and legislation
> Participate in public hearings and consultations | 10,000 | National | Regularly | 119044111428 |
| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS [Multiple Sclerosis] treatments and by contributing the patient voice to policy, access, and reimbursement discussions. | Neurological
> Multiple sclerosis | Pricing and affordability advocacy
> Advocate for fair medicine pricing | 5,000 | Regional | Regularly | 119035905477 |
| We often have to advocate for patients drug pricing, treatment baskets, and lists. | Rheumatic
> Axial spondyloarthritis | Pricing and affordability advocacy
> Advocate for fair medicine pricing | Over 100,000 | National | Regularly | 119051166861 |
| CANSA engages in policy advocacy, stakeholder consultations, and public submissions to promote equitable access to cancer prevention, diagnosis, and treatment. This includes contributing patient-centred perspectives on medicine access, reimbursement, and health system barriers through engagements with national health authorities, regulatory processes, and multi-stakeholder forums. Examples include: advocacy and submissions related to improving access to essential cancer medicines and diagnostics within the public health system; participation in consultative processes and policy discussions that inform regulatory and pricing frameworks impacting oncology treatments. | Cancer
> Cancer: most types | Pricing and affordability advocacy
> Engage in price-review board negotiations | 10,000 | National | Regularly | 119044111428 |
| CANSA engages in policy advocacy, stakeholder consultations, and public submissions to promote equitable access to cancer prevention, diagnosis, and treatment. This includes contributing patient-centred perspectives on medicine access, reimbursement, and health system barriers through engagements with national health authorities, regulatory processes, and multi-stakeholder forums. Examples include: advocacy and submissions related to improving access to essential cancer medicines and diagnostics within the public health system; participation in consultative processes and policy discussions that inform regulatory and pricing frameworks impacting oncology treatments. | Cancer
> Cancer: most types | Pricing and affordability advocacy
> Advocating for inclusion of product in reimbursement lists/national formularies | 10,000 | National | Regularly | 119044111428 |
| We often have to advocate for patients drug pricing, treatment baskets, and lists. | Rheumatic
> Axial spondyloarthritis | Pricing and affordability advocacy
> Advocating for inclusion of product in reimbursement lists/national formularies | Over 100,000 | National | Regularly | 119051166861 |
| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS [Multiple Sclerosis] treatments and by contributing the patient voice to policy, access, and reimbursement discussions. | Neurological
> Multiple sclerosis | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 5,000 | Regional | Regularly | 119035905477 |
| CANSA [Cancer Association of South Africa] engages in policy advocacy, stakeholder consultations, and public submissions to promote equitable access to cancer prevention, diagnosis, and treatment. | Cancer
> Cancer: most types | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 10,000 | National | Regularly | 119044111428 |
| CANSA engages in policy advocacy, stakeholder consultations, and public submissions to promote equitable access to cancer prevention, diagnosis, and treatment. This includes contributing patient-centred perspectives on medicine access, reimbursement, and health system barriers through engagements with national health authorities, regulatory processes, and multi-stakeholder forums. Examples include: advocacy and submissions related to improving access to essential cancer medicines and diagnostics within the public health system; participation in consultative processes and policy discussions that inform regulatory and pricing frameworks impacting oncology treatments. | Cancer
> Cancer: most types | Evidence-based patient input
> Use patient insights to inform decisions | 10,000 | National | Regularly | 119044111428 |
| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS treatments and by contributing the patient voice to policy, access, and reimbursement discussions. While MSSA does not set or negotiate drug prices, we engage with regulators, policymakers, and advisory bodies to highlight the real-world impact of pricing and access decisions on people living with MS, particularly in a South African and broader African context. | Neurological
> Multiple sclerosis | Evidence-based patient input
> Provide Real-World Evidence (RWE) to regulatory agencies | 5,000 | Regional | Regularly | 119035905477 |
| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS treatments and by contributing the patient voice to policy, access, and reimbursement discussions. Our input is informed by lived experience, patient-reported challenges, and international collaboration through global MS networks, ensuring that patient needs, equity, and sustainability are considered in decision-making processes. | Neurological
> Multiple sclerosis | Evidence-based patient input
> Leverage patient stories and lived-experience narratives | 5,000 | Regional | Regularly | 119035905477 |
| Have engaged the Department of Health. | Rare
> Rare diseases: immune | Institutional governance
> Ensure representation within governmental advisory bodies | 100 | International | Rarely | 119036013383 |
| Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS treatments and by contributing the patient voice to policy, access, and reimbursement discussions. While MSSA does not set or negotiate drug prices, we engage with regulators, policymakers, and advisory bodies to highlight the real-world impact of pricing and access decisions on people living with MS, particularly in a South African and broader African context. | Neurological
> Multiple sclerosis | Institutional governance
> Working effectively within multi-stakeholder networks | 5,000 | Regional | Regularly | 119035905477 |
| We are founder members of the SA [South Africa] NCD [Non-Communicable Disease] Alliance. | Endocrine
> Diabetes and hypertension | Institutional governance
> Maintain formal status as public interest or charitable entity | 10,000 | National | Sometimes | 119045009637 |
interactions
actions & advocacy
3 mentions
