PatientView | Norway insights from Patient Groups: A seat at the pricing table

Patient group voices

interactions

In direct contact with HOD [Helse- og omsorgsdepartementet – Ministry of Health and Care Services], Helfo [Helseøkonomiforvaltningen – Norwegian Health Economics Administration], Sykehusinnkjøp [National Hospital Procurement], and H-Dir [Helsedirektoratet – Norwegian Directorate of Health].

National cancer patient group

interactions

Patient representative within Nye Metoder [National System for Managed Introduction of New Health Technologies within the Specialist Health Service in Norway], Sykehusinnkjøp HF (the National Hospital Procurement Agency).

National HIV patient group

actions & advocacy

Weight management pharmacotherapy is also relevant for a proportion of those living with our diagnoses.

National circulatory patient group

actions & advocacy

We engage annually with the government and the Storting [the Norwegian Parliament] regarding the national budget.

National rheumatic-diseases patient group

Patient group goals

The percentages below highlight how the 13 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.

interactions

How patient groups interact with drug regulators

Find out what the goals mean

6 mentions

actions & advocacy

How patient groups get access to medicines

Find out what the goals mean

3 mentions

2 mentions

1 mention

English text	Therapy area	Category	Patients reached	Geo reach	Regulatory engagement	Respondent
In direct contact with HOD [Helse- og omsorgsdepartementet – Ministry of Health and Care Services], Helfo [Helseøkonomiforvaltningen – Norwegian Health Economics Administration], Sykehusinnkjøp [National Hospital Procurement], and H-Dir [Helsedirektoratet – Norwegian Directorate of Health].	Cancer > Cancer: digestive	Regulatory partnership > Working with regulatory bodies	5,000	National	Sometimes	119067813708
Patient representative within Nye Metoder [National System for Managed Introduction of New Health Technologies within the Specialist Health Service in Norway], Sykehusinnkjøp HF (the National Hospital Procurement Agency).	HIV > HIV	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	5,000	National	Regularly	119044208609
Patient representative within Nye Metoder [National System for Managed Introduction of New Health Technologies within the Specialist Health Service in Norway], Sykehusinnkjøp HF (the National Hospital Procurement Agency).	Cancer > Cancer: brain	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	5,000	National	Sometimes	119021795868
In direct contact with HOD [Helse- og omsorgsdepartementet – Ministry of Health and Care Services], Helfo [Helseøkonomiforvaltningen – Norwegian Health Economics Administration], Sykehusinnkjøp [National Hospital Procurement], and H-Dir [Helsedirektoratet – Norwegian Directorate of Health].	Cancer > Cancer: digestive	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	5,000	National	Sometimes	119067813708
This responsibility lies with the parent organisation.	Cancer > Cancer: breast	Regulatory partnership > With other healthcare advocates	Do not know	National	Regularly	119022116935
Such as patient advisory committees and peer support work.	Neurological > Multiple sclerosis	Regulatory partnership > With other healthcare advocates	We do not communicate with patients directly	Regional	Sometimes	119044421469
We engage annually with the government and the Storting [the Norwegian Parliament] regarding the national budget.	Rheumatic > Psoriasis and psoriatic arthritis	Impacting policy and legislation > Influence healthcare policy and legislation	Do not know	National	Regularly	119013919100
We engage annually with the government and the Storting [the Norwegian Parliament] regarding the national budget.	Rheumatic > Psoriasis and psoriatic arthritis	Impacting policy and legislation > Mobilise parliamentarians and political leaders	Do not know	National	Regularly	119013919100
We consistently advocate on behalf of the patient group.	Skin > Psoriasis	Pricing and affordability advocacy > Advocate for fair medicine pricing	100	National	Regularly	119072640311
The introduction of new medicines approved for the treatment of our diagnoses.	Gastrointestinal > IBD	Pricing and affordability advocacy > Call for reduced selling prices from manufacturers	100,000	National	Rarely	119054540171
Weight management pharmacotherapy is also relevant for a proportion of those living with our diagnoses [of lymphatc disorders].	Circulatory > Lymphatic disorders: most types	Pricing and affordability advocacy > Advocating for inclusion of product in reimbursement lists/national formularies	1,000	National	Sometimes	119072847803
Sykehusinnkjøp [Sykehusinnkjøp – Norwegian Hospital Procurement] is relevant in relation to compression garments and other medical aids.	Circulatory > Lymphatic disorders: most types	Improving access pathways > Facilitate equitable access to medicines/healthcare	1,000	National	Sometimes	119072847803

Norway

Survey insights

Patient group voices

Patient group goals

How patient groups interact with drug regulators

How patient groups get access to medicines

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