PatientView | Hungary insights from Patient Groups: A seat at the pricing table

Patient group voices

interactions

We maintain ongoing consultations with the Public Health Department and the Financing Department within the State Secretariat for Health.

National mental-health patient group

interactions

We have contacted the organisation responsible for evaluating pharmaceutical reimbursement decisions in Hungary on multiple occasions — both in writing and by telephone — and we also maintain direct, in-person engagement with them.

National neuromuscular-conditions patient group

actions & advocacy

We are members of the ECL [European Cancer Leagues] Access to Medicines Task Force. On an ad hoc basis, we assist patients with individual compassionate use requests.

National cancer patient group

Patient group goals

The percentages below highlight how the 7 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.

interactions

How patient groups interact with drug regulators

Find out what the goals mean

7 mentions

1 mention

actions & advocacy

How patient groups get access to medicines

Find out what the goals mean

1 mention

English text	Therapy area	Category	Patients reached	Geo reach	Regulatory engagement	Respondent
We maintain ongoing consultations with the Public Health Department and the Financing Department within the State Secretariat for Health [in Hungary].	Mental health > Mental health: most conditions	Regulatory partnership > Working with regulatory bodies	1,000	National	Sometimes	115043746769
We have contacted the organisation responsible for evaluating pharmaceutical reimbursement decisions in Hungary on multiple occasions — both in writing and by telephone — and we also maintain direct, in-person engagement with them.	Neuromuscular > Muscular dystrophy	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	100	National	Sometimes	115028368135
Patient organisations are only now beginning to be included in HTA [Health Technology Assessment] processes.	Gastrointestinal > IBD	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	5,000	National	Rarely	115049342576
Submission of a patient organisation position statement in support of the drug's introduction and reimbursement [in Hungary].	Cancer > Cancer: gynaecological	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	5,000	National	Sometimes	115055455368
Submission of a patient organisation position statement in support of the drug's introduction and reimbursement [in Hungary].	Cancer > Cancer: gynaecological	Regulatory partnership > Contribute to Marketing Authorisation submissions	5,000	National	Sometimes	115055455368
We have contacted the organisation responsible for evaluating pharmaceutical reimbursement decisions in Hungary on multiple occasions — both in writing and by telephone — and we also maintain direct, in-person engagement with them.	Neuromuscular > Muscular dystrophy	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	100	National	Sometimes	115028368135
We maintain ongoing consultations with the Public Health Department and the Financing Department within the State Secretariat for Health.	Mental health > Mental health: most conditions	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	1,000	National	Sometimes	115043746769
Submission of proposals for legislative instruments.	Skin > Psoriasis	Impacting policy and legislation > Contribute to the drafting of public health legislation	100	National	Rarely	115044068403
We are members of the ECL [European Cancer Leagues] Access to Medicines Task Force. On an ad hoc basis, we assist patients with individual compassionate use requests.	Cancer > Cancer: most types	Improving access pathways > Facilitate equitable access to medicines/healthcare	100,000	National	Sometimes	115038177936
We are members of the ECL [European Cancer Leagues] Access to Medicines Task Force working group.	Cancer > Cancer: most types	Institutional governance > Working effectively within multi-stakeholder networks	100,000	National	Sometimes	115038177936

Hungary

Survey insights

Patient group voices

Patient group goals

How patient groups interact with drug regulators

How patient groups get access to medicines

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