PatientView | Denmark insights from Patient Groups: A seat at the pricing table

Patient group goals

The percentages below highlight how the 13 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.

interactions

How patient groups interact with drug regulators

Find out what the goals mean

9 mentions

3 mentions

1 mention

actions & advocacy

How patient groups get access to medicines

Find out what the goals mean

3 mentions

2 mentions

English text	Therapy area	Category	Patients reached	Geo reach	Regulatory engagement	Respondent
Medicinrådet's [Medicinrådet – Danish Medicines Council] specialist committees.	Disability > Disability: most types	Regulatory partnership > Working with regulatory bodies	5,000	National	Sometimes	119050471598
The specialist committee of the Danish Medicines Council.	Cancer > Cancer: gynaecological	Regulatory partnership > Working with regulatory bodies	1,000	National	Regularly	119078816313
The Danish Medicines Council.	Autoimmune > Autoimmune: most types	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	5,000	National	Sometimes	119012193834
We have patient representatives on the specialist committees of Medicinrådet [Danish Medicines Council].	Bleeding > Haemophilia	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	1,000	National	Rarely	119066167123
Medicinrådet [Medicinrådet – Danish Medicines Council].	Endocrine > Diabetes (both types 1 and 2)	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	10,000	National	Sometimes	119073800805
We have patient representatives participating in the pre-selection process for Medicinrådet [Medicinrådet – Danish Medicines Council].	Gastrointestinal > Gastrointestinal: other	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	10,000	National	Rarely	119075485927
The Danish Medicines Council.	Rare > Rare diseases: most types	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	100,000	National	Regularly	119076871902
Specialist committee of the Medicinrådet [Medicinrådet – Danish Medicines Council].	Cancer > Cancer: gynaecological	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	1,000	National	Regularly	119012920493
When new medicines are being considered for regulatory approval.	Neurological > Neurological: other	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	1,000	National	Sometimes	119039351920
For example, a 2025 consultation on the introduction of new medicines [Denmark]..	Cancer > Cancer: breast	Impacting policy and legislation > Participate in public hearings and consultations	5,000	National	Regularly	119042663714
We have a patient adviser who also provides guidance on price differences and applications for reimbursement support.	Neurological > Neurological: other	Pricing and affordability advocacy > Advocate for fair medicine pricing	1,000	National	Rarely	119012119513
We have a patient adviser who also provides guidance on price differences and applications for reimbursement support.	Neurological > Neurological: other	Pricing and affordability advocacy > Tracking and monitoring drug pricing/drug shortages	1,000	National	Rarely	119012119513
We have a patient adviser who also provides guidance on price differences and applications for reimbursement support.	Neurological > Neurological: other	Pricing and affordability advocacy > Advocating for inclusion of product in reimbursement lists/national formularies	1,000	National	Rarely	119012119513
We have patient representatives serving on the specialist sub-committees of Medicinrådet [Danish Medicines Council] and the organisation maintains contact with Amgros [the Danish public hospital medicines procurement authority] where relevant.	Bleeding > Haemophilia	Improving access pathways > Facilitate equitable access to medicines/healthcare	1,000	National	Rarely	119066167123
Sensors and diabetes devices for patients.	Endocrine > Diabetes (both types 1 and 2)	Improving access pathways > Facilitate equitable access to medicines/healthcare	Do not know	National	Rarely	119072858505
Our patient group has received a treatment guideline, which is a positive development.	Rare > Fabry disease	Diagnosis and medicines delivery > Participate in developing clinical guidelines	1,000	National	Regularly	119021309632
Member of the specialist committee of the Danish Medicines Council.	Visual impairment > Retinal diseases	Institutional governance > Ensure representation within governmental advisory bodies	100,000	National	Rarely	119046184994
We have patient representatives on the specialist committees of Medicinrådet [Danish Medicines Council].	Bleeding > Haemophilia	Institutional governance > Ensure representation within governmental advisory bodies	1,000	National	Rarely	119066167123
As a patient organisation, we are frequently consulted for advice.	Kidney > Kidney diseases	Institutional governance > Ensure representation within governmental advisory bodies	5,000	National	Regularly	119073950889

Denmark

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Patient group goals

How patient groups interact with drug regulators

How patient groups get access to medicines

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